关键词: 老年痴呆症, 照顾者负担, 影响因素, 卫生服务

Abstract: Objective To investigate burden status of family caregivers for outpatients with dementia disease and its influencing factors in Guangzhou, and analyze demands and utilization of health services. Methods All outpatients with dementia, who were diagnosed in the outpatient department of a hospital in Guangzhou, met inclusive criteria, and obtained informed consents of their caregivers, together with their family caregivers were recruited from March to September 2017. Caregiver Burden Inventory （CBI） was used to assess caregiver burden. The general information of the participants, and the health demands and utilization of the health services were collected. Student′s t test, ANOVA, and multiple linear regression were used to determine factors influencing the caregiver burden. Results A total of 97 pairs of dementia outpatients and their caregivers were enrolled. The average age of the caregivers was （55 ± 12） years. The total CBI score of dementia caregivers was （40.43 ± 20.05）, and time-dependent burden was the heaviest. The main influencing factors were subjective economic burden （standard coefficient [SC]： 0.24, 0.43）, weekly care time ≥ 61 hours （SC： 0.22）, and undertaking the housework apart from the caregiving work （SC： 0.21）. The health services demanded most for dementia patients were nursing home, special care, and home treatment. However, physical examination and outpatient medical treatment were the actually utilized health services. Conclusion The economic burden and time cost were the factors affecting the caregiver burden. The health service demand and utilization for dementia patients are imbalance. It is suggested to establish specialized care facilities and senior activity centers for dementia patients.

Key words: Dementia, Caregiver burden, Influencing factor, Health service